Raising little Westies, and life as parent of a special needs son

Living by moments

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Here at Westie Central there seems to be one significatn difference to a lot of homes where life features the word “spectrum”: We seem to live a lot more moment by moment then a lot of other autism families.

Our son seems to not really have the concept of sequence nailed down really all that well. While he might know that events happen in a sequence, telling him anything beyond the event that is happening next seems to make the day worse, not better. Talk about going to the shops – he will be off getting the shoes on to go. Don’t worry that it’s 10am and you were talking about going at 4pm. Yet he does know that to go to the shops, certain things happen in order: you have to have clothes on. You have to have socks and shoes on. HE has to get into the car, and put his seat-belt on (without any help at all thank you very much). “Someone (else)” has to opent the gate, and Mum or Dad have to be ready to drive the car. SOON dammit!

And so it is with bike-riding. If anyone mentions the word “bike” when he would rather be riding his bike than staying at home, well, they had better be ready to take him for a bike ride.

So that’s what happend just after lunch today. On the spur of the moment we went from chillin’ at home (because school is tomorrow) – to all of us having to go for a bike-ride.

At least the bees left me alone today.


4 responses to “Living by moments

  1. Di October 16, 2011 at 6:52 am

    Well, I think that is wonderful…….
    How old is your little guy with asd?

    • Westie October 16, 2011 at 9:02 am

      Our youngest – BTB Fan – turned 6 in July.
      Magpie has presented some curly questions for us this year, he will turn 8 in December and it sounds like when his school get their act together he will be going off to be assessed for “something”.

  2. Valerie foley October 18, 2011 at 10:33 am

    That whole pesky time thing is still a massive deal here.
    Is it wrong to me impressed with the no training wheels type situation? I am deeply impressed.

    • Westie October 18, 2011 at 11:13 am

      Seems Bec & I have never quite let the young bloke near too many of the manuals on “how to be autistic”, some things he’s really good at (don’t talk, obsess about Thomas the Tank Engine), other things he totally ignores (“physically capable”, “fit as a mallee bull”).

      I taught each of my kids to ride without training wheels before they turned 4. Each one took about a solid weekend followed by a LOT of work. Actually BTB Fan was taught not too long after Magpie, because when he saw Magpie riding without training wheels that was all the push he needed ( there is 18 months between them, BTB Fan was more than 12 months younger than the other two when he learned to ride a bike without training wheels).

      If you know Nay from Facebook or Autism United, I got very frustrated with her son over the whole bike riding issue. Then about four months later they worked out he is probably on the spectrum, and about that time, we started to work out exactly how a-typical BTB Fan is with his physical ability – strength, balance, coordination… if we could talk to him about things like football, he’d be fantastic.

      That weekend is the first time that I can remember that BTB Fan had someone in front of him – and it didn’t cause him to have a tantrum.

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