July 9, 2012
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Yesterday, I visited a person to help them with a problem they were having. While I was there we discussed a few other topics as people normally do.
This person runs some events in support of the autism community and mentioned to me some unusual behaviour she had noticed at a recent event. It related to the behavior of a carer rather than a participant.
Unfortunately, any organisation which delivers services to minors, has to engage those kids through a guardian. Possibly a parent, possibly somebody else. So here is an organisation which is delivering services to people with physical, mental and emotional elements, by engaging the carers. Most of those carers are closely related to the people they are caring for, and when we take our child to be assessed to identify what might explain their behaviour we are told there is a heavy hereditary component to these conditions.
So can somebody please explain to me why it is surprising to people who run respite services, that some of the people who need those services the most, might be less than sociable? Might have anxiety or social phobias which strongly impact how they deal with others?
June 14, 2011
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Most my regulars already know about the fantastic web group that Nicole English kicked off over at the Autism United Ning community. Over the long weekend we celebrated not just Queen Elizabeth’s birthday, but also a certain Bogan Princess (complete with sash presentation). Happy Big For OH!
For the second time, a whole bunch of people who usually only meet each other on-line met at Club B, bringing along a whole bunch of citizens of the spectrum. This time, the weather kept everyone indoors… which did bring about a few concerns but they were pretty minor really! Far fewer trains than last time, but they still made an appearance. It was also nice to see another bloke, not just Westie & Brian. Maybe next time at Club B there’ll be another one… or two… no pressure!
It was a fantastic evening, and a fantastic opportunity to catch up with everyone shortly after the first confirmed “in the wild” sighting of Valerie Foley’s “The Autism Experience“ in an actual book-shop. Budding author that she is, quite a few signed copies were presented, and there was a lot of discussion of how well travelled, dog-eared, and tabbed for future continuing reference each persons copy had already become.
Oh and to the management of Club B, it seems you’re definitely in the sweet spot for the Sydney chapter of Autism United (we need t-shirts, or bag patches or something). On behalf of all the Westies, I hope you open the club to us again and again…